Only patients with a newly diagnosed cyst (discovered in the past 6 months) will be asked to fill out patient questionnaires at home. The questionnaire can only be filled out online, not on paper. This part of the study is not mandatory. In case you do not wish to receive questionnaires, you can still participate in the study.
A link to the questionnaires will be sent to you by e-mail, after you have given us permission to do so. The questions will concern your experience with pancreatic cyst surveillance and the impact it has on your daily life. Some of these questions may be personal. Answering the questionnaire will take about 5 to 15 minutes of your time.
If you participate in the patient questionnaires, you will receive a link to complete the questionnaire online. This will occur once after diagnosis and each follow-up visit. The first questionnaire will also contain several extra questions regarding your background and medical history.
To view or download the patient questionnaires, continue to Downloads.